Long Name Dementias Platform UK
Description Dementias Platform UK (DPUK) is a partnership between 29 public and private sector organisations, with core funding from the Medical Research Council. Based at Oxford University, it brings together expertise from universities, charities, and pharmaceutical and technology companies to enable crucial breakthroughs in dementia research. DPUK focuses its attention on three key, human-centred areas: A repository of dementia-optimised health research data (DPUK Data Portal) An engine for matching public volunteers to the most appropriate new research studies (Trials Delivery Framework) A programme of cutting-edge experimental studies (Experimental Medicine Incubator) DPUK has also developed expert brain imaging and stem cell technology networks to increase our understanding of how dementia starts.
Start date 01-01-2014
End date 01-01-2024
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The C-Surv Data Model

Following user consultation, a standard data model (C-Surv), optimised for data discovery, was developed using data from 12 Dementias Platform UK (DPUK) population and clinical cohort studies. The model uses a four-tier nested structure based on 18 data themes selected according to user behaviour or technology. Standard variable naming conventions are applied to uniquely identify variables within the context of longitudinal studies. The data model was used to develop a harmonised dataset for 11 cohorts. This dataset populated the Cohort Explorer data discovery tool for assessing the feasibility of an analysis prior to making a data access request. It was concluded that developing and applying a standard data model (C-Surv) for research cohort data is feasible and useful.

ontologies-clinical-dpuk-3 DPUK


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