Projects
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| Name | MOPEAD |
|---|---|
| Long Name | Models of patient engagement for Alzheimer’s disease |
| Description | Models of patient engagement for Alzheimer’s disease. Dementia researchers are increasingly focusing their efforts on finding ways to prevent the onset of dementia symptoms in the first place, and for this they need to work with people who are still in the very earliest stages of the disease. The MOPEAD project aims to identify and test different models for engaging with this important group and determine which models work best in different situations. As well as adding to our understanding of the earliest stages of dementia, the project will facilitate recruitment for clinical trials and, most importantly, ensure that patients are able to access support from early on in their disease. |
| Objectives | 1. Establish multiple key regional project sites across Europe to identify and test models of efficient earlier identification of mild AD dementia and prodromal AD patients, and awareness of AD, memory complaints, and cognitive decline risks 2. Assess key tools, mechanisms and processes for community engagement and patient identification and resource utilisation in various communities 3. Compare and contrast various patient access models; and how they contribute to, improved detection, diagnosis, and clinical research in these communities. 4. Based on findings, establish archetypes of patient access models for implementation in similar communities, in synergy with existing country specific government and non-government stakeholders 5. Advocate and distribute access models for broader application and for replication |
| Website | https://web.archive.org/web/20210430160153/https://www.mopead.eu/ |
| Start date | 01-10-2016 |
| End date | 31-12-2019 |
| Logo |  |
| Name | Projects | Type of institution | Country | |
|---|---|---|---|---|
| Alzheimer Europe | EPAD AMYPAD MOPEAD AETIONOMY EMIF RADAR-AD ROADMAP NEURONET Pharma-Cog EPND | Patient/carers organisation | Luxembourg | |
| Eli Lilly And Company Ltd | EPAD IMPRiND MOPEAD PHAGO PRISM RADAR-AD ROADMAP NEURONET IDEA-FAST Pharma-Cog | EFPIA | United Kingdom | |
| Karolinska Institutet | EPAD AMYPAD MOPEAD AETIONOMY EMIF RADAR-AD | Academia | Sweden | |
| Klinikum Der Universitaet Zu Koeln | EPAD AMYPAD MOPEAD ADAPTED | Academia | Germany | |
| Fundació ACE | ADAPTED MOPEAD | Academia | Spain | |
| Astrazeneca AB | MOPEAD PHAGO Mobilise-D IDEA-FAST PD-MIND Pharma-Cog | EFPIA | Sweden | |
| VU University Medical Center Amsterdam | EPAD AMYPAD IM2PACT PRISM MOPEAD RADAR-CNS RADAR-AD EMIF PRISM2 Pharma-Cog EPND | Academia | Netherlands | |
| Fundacio Hospital Universitari Vall D'Hebron - Institut De Recerca | MOPEAD RADAR-CNS | Academia | Spain | |
| Univerzitetni Klinicni Center Ljubljana | MOPEAD | Academia | Slovenia | |
| Asdm Consulting | MOPEAD | SME | Belgium | |
| Modus Research And Innovation Ltd | ADAPTED MOPEAD | SME | United Kingdom | |
| European Institute Of Women's Health Limited | MOPEAD | SME | Ireland | |
| Slovensko Zdruzenje Za Pomoc Pri Demenci - Spomincica Alzheimer Slovenija | MOPEAD | Patient/carers organisation | Slovenia | |
| Gmv Soluciones Globales Internet Sau | MOPEAD | Other | Spain | |
| Stockholms Lans Landsting | MOPEAD | Other | Sweden |
| WP number | Description | Project | |
|---|---|---|---|
| WP1 | Consortium management and governance | MOPEAD | |
| WP2 | Patient engagement strategies | MOPEAD | |
| WP3 | Common protocol for evaluation | MOPEAD | |
| WP4 | Evaluation of patient engagement strategies and enrichment | MOPEAD | |
| WP5 | Dissemination | MOPEAD |
| Deliverable number | Title | Project | Submission date | Link | Keywords | |
|---|---|---|---|---|---|---|
| D2.1 | Educational Leaflet | MOPEAD | 05-12-2017 | https://docs.wixstatic.com/ugd/e8882a_3480ea60972043f8906e1b097a5b7e41.pdf | ||
| D2.2 | Online Campaign Strategy Report | MOPEAD | 26-05-2017 | https://docs.wixstatic.com/ugd/e8882a_95cb221d92f84d7daf6cec11f4820a27.pdf | ||
| D2.3 | Citizen Science Web Design Report | MOPEAD | 26-05-2017 | https://docs.wixstatic.com/ugd/e8882a_dfffef9db6624acf9d86f8d1817fe290.pdf | ||
| D2.4 | Open House Campaign Strategy Report | MOPEAD | 26-05-2017 | https://docs.wixstatic.com/ugd/e8882a_70d872fa5f73468eb41ceeb32f899788.pdf | ||
| D2.5 | Primary Care Campaign Strategy Report | MOPEAD | 26-05-2017 | https://docs.wixstatic.com/ugd/e8882a_1e2dc7dc89694904bcdc1db4e3f1980f.pdf | ||
| D2.6 | Tertiary Care Campaign Report | MOPEAD | 13-04-2017 | https://docs.wixstatic.com/ugd/e8882a_b68902d849f44db1b1bc750958340fa4.pdf | ||
| D2.7 | Online Campaign Tactic Plan Report | MOPEAD | 19-06-2017 | https://docs.wixstatic.com/ugd/e8882a_920a1c3981d54322911bfd42b3ff23bd.pdf | ||
| D5.2 | MOPEAD Outreach Report | MOPEAD | 20-12-2019 | https://17215c60-696c-4eb6-9adb-50cde843a50f.filesusr.com/ugd/e8882a_8a7bcc15f9e44ca09ab48a5b0a67ef6b.pdf | ||
| D5.3 | Recommendations for policy makers and regulators | MOPEAD | 18-12-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5cc0973a6&appId=PPGMS | ||
| D5.5 | End of project seminar | MOPEAD | 20-12-2019 | https://17215c60-696c-4eb6-9adb-50cde843a50f.filesusr.com/ugd/e8882a_93dcd8951de1402fb892f6dd8ae65de6.pdf | ||
| D5.6 | Gender Policy brief | MOPEAD | 20-12-2019 | https://17215c60-696c-4eb6-9adb-50cde843a50f.filesusr.com/ugd/e8882a_08fb25c1523345ed90dd6b3e32cede6b.pdf | ||
| D4.3 | Anonymous Open Access database: MOPEAD's raw data and results available for use by research community and relevant stakeholders | MOPEAD | 31-12-2020 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5cc0cee07&appId=PPGMS | ||
| D4.5 | Economic Evaluation Report | MOPEAD | 31-12-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5cc0cf710&appId=PPGMS | ||
| D2.11 | Open House Campaign Final Execution Report | MOPEAD | 14-06-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5c4f5f19e&appId=PPGMS | ||
| D2.8 | Online Campaign Execution Report | MOPEAD | 28-06-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5c7c94af3&appId=PPGMS | ||
| D4.4 | Report on comparison and evaluation of efficacy of PE strategies in different countries | MOPEAD | 31-12-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5cc096072&appId=PPGMS | ||
| D2.13 | Tertiary Care Campaign Final Execution Report | MOPEAD | 14-06-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5c4fbaba7&appId=PPGMS | ||
| D3.2 | Common protocol of evaluation execution report | MOPEAD | 27-09-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5c7c97d3d&appId=PPGMS | ||
| D5.4 | Public education/awareness raising strategies | MOPEAD | 31-12-2019 | https://ec.europa.eu/research/participants/documents/downloadPublic?documentIds=080166e5cc097b46&appId=PPGMS |
| Title | First author last name | Year | Project | Link | Keywords | |
|---|---|---|---|---|---|---|
| The MOPEAD project: Advancing patient engagement for the detection of "hidden" undiagnosed cases of Alzheimer's disease in the community | Rodrıguez-Gomez | 2019 | MOPEAD | http://dx.doi.org/10.1016/j.jalz.2019.02.003 | Clinical research paper, Alzheimer's disease, Early diagnosis, Diagnostic gap, Patient engagement, Population-based screening, Citizen science | |
| Patient Engagement: The Fundació ACE Framework for Improving Recruitment and Retention in Alzheimer's Disease Research | Boada | 2018 | MOPEAD | https://doi.org/10.3233/jad-170866 | Alzheimer’s disease, Fundació ACE, MOPEAD, clinical trials, community outreach, patient engagement, recruitment, retention | |
| Clinical Applicability of the Specific Risk Score of Dementia in Type 2 Diabetes in the Identification of Patients with Early Cognitive Impairment: Results of the MOPEAD Study in Spain | Ortiz Zuniga | 2020 | MOPEAD | https://doi.org/10.3390/jcm9092726 | Clinical research paper, Alzheimer's disease, dementia, diabetes, mild cognitive impairment, risk scores | |
| The characterisation of subjective cognitive decline | Jessen | 2020 | MOPEAD | https://doi.org/10.1016/s1474-4422(19)30368-0 | Review article, clinical research, subjective cognitive decline, Alzheimer's disease, neurodegeneration | |
| General practitioners’ attitude toward early and pre‐dementia diagnosis of AD in five European countries—A MOPEAD project survey | Sannemann | 2021 | MOPEAD | https://doi.org/10.1002/dad2.12130 | Alzheimer's disease, dementia, early diagnosis, general practitioners, mild cognitive impairment, primary care | |
| Identification of undiagnosed dementia cases using a web‐based pre‐screening tool: The MOPEAD project | Rodrigo | 2021 | MOPEAD | https://doi.org/10.1002/alz.12297 | Alzheimer's disease, diagnostic gap, early diagnosis, patient engagement, population‐based screening | |
| Complementary pre-screening strategies to uncover hidden prodromal and mild Alzheimer's disease: Results from the MOPEAD project | Boada | 2021 | MOPEAD | https://doi.org/10.1002/alz.12441 | Alzheimer's disease; diagnostic gap; early diagnosis; patient engagement; population-based screening. | |
| A Cost-Consequence Analysis of Different Screening Procedures in Alzheimer’s Disease: Results from the MOPEAD Project | Wimo | 2021 | MOPEAD | https://doi.org/10.3233/jad-210303 | Alzheimer’s disease; cost analysis; cost-consequence analysis; costs; dementia; diagnosis; diagnostic work-up; screening. |
| Title | Description | Type | Project | |
|---|---|---|---|---|
| Patient engagement protocols | MOPEAD has developed specific test protocols for four models for Patient Engagement (PE) to explore two conditions (Mild AD and prodromal AD). The four MOPEAD PE models are: 1) AD Citizen Science/web-based strategy (self-administered online neuropsychological tests), 2) Open House Initiative (Neuropsychological tests at a memory clinic), 3) Primary Care (Neuropsychological tests done by GPs) and; 4) Diabetes clinics (Neuropsychological tests administered to type 2 diabetes patients at diabetes clinics). For more information please visit: |
tools-clinical-mopead-10 | MOPEAD | |
| Protocols for patient engagement | MOPEAD tested and evaluated four models for Patient Engagement (PE) to explore two conditions (Mild AD and prodromal AD). The four MOPEAD PE models are: 1) AD Citizen Science/web-based strategy (self-administered online neuropsychological tests), 2) Open House Initiative (Neuropsychological tests at a memory clinic), 3) Primary Care (Neuropsychological tests done by GPs) and; 4) Diabetes clinics (Neuropsychological tests administered to type 2 diabetes patients at diabetes clinics). Each model has its own specific protocol of tests. For more information, please visit: |
sem-clinical-mopead-2 | MOPEAD |
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